Wednesday, September 03, 2008
Surgery
Nicole will be having surgery this Friday (5th) for a couple reasons:
1) Ear tubes: we hope the near-constant infections will cease after this. Between the pain of infection, and the stomach issues resulting from antibiotics, we have been anxious for this all to end!
2) Tonsils and adenoids: Results from the sleep study showed she does have severe sleep apnea, and needs more oxygen. We could have done a CPAP (meaning an oxygen mask she'd have to wear every night...not very easy with a 15-month-old), or surgery (removing these will increase airway). Since she has to be put under anesthesia already for the tubes, this seemed like a doable option and a decent time to do it.
Bad News:
baby in pain
the surgery itself
overnight hospital stay
(more) drugs
delayed anniversary (our 5th)
nervous mommy (probably daddy too)
anesthesia/possible airway issues
Good News:
just getting it done!
great surgeon
sleep relief for Nicole (and perhaps others, too!)
relief of ear pain
ease of breathing/possible elimination of apnea
prayers/blessings
Medicaid
less spontaneous trips to pediatrician (we hope)
chocolate (for mommy and later Nicole, too)
snuggle time (whole family)
P.S. Vanessa thankfully is doing well through all of this...yet we are beginning to wonder if she should do a sleep study just to be safe (are we gluttons for punishment or what?!).
1) Ear tubes: we hope the near-constant infections will cease after this. Between the pain of infection, and the stomach issues resulting from antibiotics, we have been anxious for this all to end!
2) Tonsils and adenoids: Results from the sleep study showed she does have severe sleep apnea, and needs more oxygen. We could have done a CPAP (meaning an oxygen mask she'd have to wear every night...not very easy with a 15-month-old), or surgery (removing these will increase airway). Since she has to be put under anesthesia already for the tubes, this seemed like a doable option and a decent time to do it.
Bad News:
baby in pain
the surgery itself
overnight hospital stay
(more) drugs
delayed anniversary (our 5th)
nervous mommy (probably daddy too)
anesthesia/possible airway issues
Good News:
just getting it done!
great surgeon
sleep relief for Nicole (and perhaps others, too!)
relief of ear pain
ease of breathing/possible elimination of apnea
prayers/blessings
Medicaid
less spontaneous trips to pediatrician (we hope)
chocolate (for mommy and later Nicole, too)
snuggle time (whole family)
P.S. Vanessa thankfully is doing well through all of this...yet we are beginning to wonder if she should do a sleep study just to be safe (are we gluttons for punishment or what?!).
Sunday, August 10, 2008
Wires and stickers
Well, last night was Nicole's sleep study. We arrived at the clinic a little before 9pm and the tech introduced himself and got Nicole hooked up to all her "fun" little wires. She even got to play with some (that weren't attached to her, of course). I was impressed with the organization and strategy of wire placement the tech had to keep "little hands" from creating complications. Nicole got to sport this fancy "headband" to keep her from noticing all the leads on her head (although that band was the only thing she really did try to pull off).
Nicole did awesome with the set-up and even seemed like she had a little bit of fun. She even tried to stick on the surplus stickers and wires the tech gave her to play with.
After the tech placed about 22 wires (with two more under her nose yet to come), he wheeled in her "test crib." Nicole thought the bed (or play area as she perceived it) was pretty cool, and she even decided to pose for me showing off all the nifty wires and bands:
"Mommy, don't forget the cool toe piece!"
As if the wires and such weren't enough, I still needed to put her brace on for the night. She humored me, but gave me this look like, "how much more are we going to have to do here?"
Still she had her bear and "bee-bee" (binky) to help her feel (more) comfortable.
The hardest part of the night was getting her to sleep. After getting her all situated, I could see in her expression that she was starting to put 2 and 2 together and that she was somehow supposed to sleep with all this stuff on. We read a few books, but then she just started crying. I would have gladly just snuggled her to sleep, but with all those wires, her brace, and the box the wires were connected to, it wasn't going to happen. So, I held her as comfortably as I could and just rocked her while the tech came in and out a couple of times. She finally passed out enough to where I could lay her down. Thankfully, she more or less slept the rest of the night.
The weirdest part of the night was knowing I was sleeping in a room monitored by video, with a tech that would come in at any moment several times during the night to add/adjust wires. I also slept in a bed with a plastic mattress cover (for younger kids who come take the test) that crinkled with every motion, and a pillow that wasn't uncomfortable, but felt very odd. It wasn't bad, but with all that, and worrying about how well Nicole would do, I felt a little restless. I am just glad she was too tired to care!
We were woken up at 6:30 so the tech could remove wires and wrap things up so we could go. I was tempted to ask if we could just unhook her and let us sleep longer, but they don't really do that (probably so the techs can also go home and get sleep). Nicole looked a little less than thrilled to see the tech at first, but quickly cheered up and started jabbering as she realized she was being set free. After that we just had to get up and out the door. Since Nicole still had a lot of stickers on her, I had to wait for home and a tubby to take them off, but I took a picture of them before we left (she looks mad in this shot because I set her down and wasn't showing her the picture I was taking right that moment!):
This is how we both felt on the ride home:
Now we're home and happy to be here! We're so relieved to know the test went successfully! Now we just wait for the results...
Nicole did awesome with the set-up and even seemed like she had a little bit of fun. She even tried to stick on the surplus stickers and wires the tech gave her to play with.
After the tech placed about 22 wires (with two more under her nose yet to come), he wheeled in her "test crib." Nicole thought the bed (or play area as she perceived it) was pretty cool, and she even decided to pose for me showing off all the nifty wires and bands:
"Mommy, don't forget the cool toe piece!"
As if the wires and such weren't enough, I still needed to put her brace on for the night. She humored me, but gave me this look like, "how much more are we going to have to do here?"
Still she had her bear and "bee-bee" (binky) to help her feel (more) comfortable.
The hardest part of the night was getting her to sleep. After getting her all situated, I could see in her expression that she was starting to put 2 and 2 together and that she was somehow supposed to sleep with all this stuff on. We read a few books, but then she just started crying. I would have gladly just snuggled her to sleep, but with all those wires, her brace, and the box the wires were connected to, it wasn't going to happen. So, I held her as comfortably as I could and just rocked her while the tech came in and out a couple of times. She finally passed out enough to where I could lay her down. Thankfully, she more or less slept the rest of the night.
The weirdest part of the night was knowing I was sleeping in a room monitored by video, with a tech that would come in at any moment several times during the night to add/adjust wires. I also slept in a bed with a plastic mattress cover (for younger kids who come take the test) that crinkled with every motion, and a pillow that wasn't uncomfortable, but felt very odd. It wasn't bad, but with all that, and worrying about how well Nicole would do, I felt a little restless. I am just glad she was too tired to care!
We were woken up at 6:30 so the tech could remove wires and wrap things up so we could go. I was tempted to ask if we could just unhook her and let us sleep longer, but they don't really do that (probably so the techs can also go home and get sleep). Nicole looked a little less than thrilled to see the tech at first, but quickly cheered up and started jabbering as she realized she was being set free. After that we just had to get up and out the door. Since Nicole still had a lot of stickers on her, I had to wait for home and a tubby to take them off, but I took a picture of them before we left (she looks mad in this shot because I set her down and wasn't showing her the picture I was taking right that moment!):
This is how we both felt on the ride home:
Now we're home and happy to be here! We're so relieved to know the test went successfully! Now we just wait for the results...
Tuesday, August 05, 2008
Family Update
Since we've been absent for a while on this site, I thought I'd tell a little about what we've been up to:
Nicole:
*Jabbering up a storm: There's a lot of words in there we don't recognize yet, but she is beginning to build up her vocabulary, including "poop," "amen" ("mehhhh"), "Thank you" ("Deet-doo"), and "doggie."
*Bum-scooting and push-walking: Although it's a common sight at our house, Nicole gets smiles and comments when she scoots at lightning speeds with one leg bent and one straight (you kind of have to see it to really understand). She has a blast showing off her skills. She also loves her push toy and has figured out how to turn it so she can cruise all over the downstairs.
*Sporting 4.5 teeth: After probably 6 months of waiting, she got in two more teeth (on the top), then her mouth sort of gave up, mid-attempt, on the 5th. I love seeing her toothy smile!
*Little Sister Syndrome: Nicole now has to be a part of everything, and tries very hard to do things just like Vanessa. Somethings are more desireable ("dancing" to "Strawberry Shake") than others (saying "no" and trying to snag toys from other kids). She is very aware of things Vanessa does that she can't, but most of the time we're able to include her some way. Her biggest thing lately has been the infatuation with Vanessa's toddler bed. She has figured out how to climb onto it, and will bounce or lay on it with a pretty satisfied look on her face.
*Visiting more doctors: While this may not be "new" news, we have discovered some other doctors and programs we need to be involved with. Nicole will be doing a sleep study Saturday because she likely has partial obstruction of her airway during sleep. She is also seeing an otolaryngologist (Ear, nose, and throat doctor), because she has a bifid uvula (split) and (very likely) a submucous cleft (different but related to cleft palate) that is the cause of her frequent ear infections. She'll probably get tubes. We may be able to have Nicole meet with a physical therapist soon to be sure her leg muscles/motor skills are developing as they should. Oh, and for good measure, we're seeing another doctor, just because she might be the closest we have in Utah to a dwarfism specialist. Yee-haw!
Vanessa:
*Mommy-in-training: Vanessa loves to try to be a second mommy to Nicole, and when we have to teach Nicole not to hit, Vanessa wants to show her "how to be gentle." I've also caught her picking up dirty clothes (wow!) and even trying to undress Nicole for bathtime (much to Nicole's frustration). It requires patience from me, but it's neat to see her so happy to help out.
*Full of imagination: I often catch her acting out her own little stories. Usually it has something to with what she has read or watched, but sometimes she really shows she has a mind of her own. Fequently made-up songs are involved. In addition, when we are visiting with people and she wants to be a part of the conversation (every time), she make up something she thinks sounds like adult talk. Sometimes it's amazingly accurate, and sometimes her words are much like a dream (she makes no sense). Either way it gets the attention she loves.
*Becoming a "big kid": She is learning how to do so much on her own now. She has gotten brave enough to step on the little snapper fireworks with her shoes and has learned how to do a handstand against the wall. We got her "Hi-Ho Cherry-O" and she loves playing that game and any other game (whether she gets it or not). Today she wanted me to teach her how to play piano and tell her the time, then proceded to "teach" me how to play and how to read a clock. She has even decided she likes pumping her legs on the swing so she can swing herself. She is always trying to hang out with the older kids, and I am quite sure she believes they're the same age as her.
*Driver: Whenever we have to move the car, or drive in the parking lot, Vanessa gets to ride on our lap and "steer" for us. She gets a little excited and wild about it, so she is more squeals than skills, but who needs driving skills at three?! And, whenever possible, she wants us to make our car drive "like McQueen." I think we'll be in trouble later!
Matt:
*"New" car: We have put off having two cars as long as possible, but have finally caved. We realized it was the best way to actually get to see Matt with his 8am-10pm schedule. Now he can zip home for a little bit when a client cancels or his brain's going to explode from overload.
Matt has gone back to his true love, the Volvo. It's a great little car, especially considering it's 18 years old and has no A/C. The girls don't always like it (since 100 degree weather requires open windows), but for him it's a fun "project" car that reduces stress for him, and for both of us it brings back a lot of great dating memories.
*300+ hours: Because he has only one mode when it comes to his schedule (busy) and loves the challenges associated with seeing clients, Matt is now past 300 hours, and will likely have another 50 by the end of the summer. The best part: he will be done with his client hours well before graduation and feel really great about it. The worst part: he might end up with an ulcer or a breakdown before graduation, too!
*Teacher: As part of the MFT program, Matt will be teaching a class fall semester: Marriage Preparation. This will allow him to train for another aspect of becoming professor (maybe he'll even get a TA to take care of some of the work). It will be at 8am, so we hope the students will be awake and interactive, but I just told Matt to tell one of his classic stories, and he should be good! It will be excited to see what experiences he has with it.
Me:
To be honest, I don't really have much news to share but here's my attempt anyway:
*Couple Communication: Matt and I have finally completed the second half of our teaching to certify as instructors for a communication class/program. We will be official as soon as we take our instructor test! Matt's been using it in some of his therapy cases, so he's a bit more of a pro than me, but I enjoy the training and interacting with the couples we've taught.
*Relief Society 4th Sunday Teacher: I get to teach once a month in Relief Society now, and I don't know if I've ever been so completely excited for a calling (although I have enjoyed past callings). I have been able to study in-depth some of my very favorite talks, and I get to still be in Relief Society (when we're not sick, traveling or sub-ing that is). I am still learning what it takes to be a good teacher, but hopefully the women who are being "taught" are benefitting from it as much as I am!
Nicole:
*Jabbering up a storm: There's a lot of words in there we don't recognize yet, but she is beginning to build up her vocabulary, including "poop," "amen" ("mehhhh"), "Thank you" ("Deet-doo"), and "doggie."
*Bum-scooting and push-walking: Although it's a common sight at our house, Nicole gets smiles and comments when she scoots at lightning speeds with one leg bent and one straight (you kind of have to see it to really understand). She has a blast showing off her skills. She also loves her push toy and has figured out how to turn it so she can cruise all over the downstairs.
*Sporting 4.5 teeth: After probably 6 months of waiting, she got in two more teeth (on the top), then her mouth sort of gave up, mid-attempt, on the 5th. I love seeing her toothy smile!
*Little Sister Syndrome: Nicole now has to be a part of everything, and tries very hard to do things just like Vanessa. Somethings are more desireable ("dancing" to "Strawberry Shake") than others (saying "no" and trying to snag toys from other kids). She is very aware of things Vanessa does that she can't, but most of the time we're able to include her some way. Her biggest thing lately has been the infatuation with Vanessa's toddler bed. She has figured out how to climb onto it, and will bounce or lay on it with a pretty satisfied look on her face.
*Visiting more doctors: While this may not be "new" news, we have discovered some other doctors and programs we need to be involved with. Nicole will be doing a sleep study Saturday because she likely has partial obstruction of her airway during sleep. She is also seeing an otolaryngologist (Ear, nose, and throat doctor), because she has a bifid uvula (split) and (very likely) a submucous cleft (different but related to cleft palate) that is the cause of her frequent ear infections. She'll probably get tubes. We may be able to have Nicole meet with a physical therapist soon to be sure her leg muscles/motor skills are developing as they should. Oh, and for good measure, we're seeing another doctor, just because she might be the closest we have in Utah to a dwarfism specialist. Yee-haw!
Vanessa:
*Mommy-in-training: Vanessa loves to try to be a second mommy to Nicole, and when we have to teach Nicole not to hit, Vanessa wants to show her "how to be gentle." I've also caught her picking up dirty clothes (wow!) and even trying to undress Nicole for bathtime (much to Nicole's frustration). It requires patience from me, but it's neat to see her so happy to help out.
*Full of imagination: I often catch her acting out her own little stories. Usually it has something to with what she has read or watched, but sometimes she really shows she has a mind of her own. Fequently made-up songs are involved. In addition, when we are visiting with people and she wants to be a part of the conversation (every time), she make up something she thinks sounds like adult talk. Sometimes it's amazingly accurate, and sometimes her words are much like a dream (she makes no sense). Either way it gets the attention she loves.
*Becoming a "big kid": She is learning how to do so much on her own now. She has gotten brave enough to step on the little snapper fireworks with her shoes and has learned how to do a handstand against the wall. We got her "Hi-Ho Cherry-O" and she loves playing that game and any other game (whether she gets it or not). Today she wanted me to teach her how to play piano and tell her the time, then proceded to "teach" me how to play and how to read a clock. She has even decided she likes pumping her legs on the swing so she can swing herself. She is always trying to hang out with the older kids, and I am quite sure she believes they're the same age as her.
*Driver: Whenever we have to move the car, or drive in the parking lot, Vanessa gets to ride on our lap and "steer" for us. She gets a little excited and wild about it, so she is more squeals than skills, but who needs driving skills at three?! And, whenever possible, she wants us to make our car drive "like McQueen." I think we'll be in trouble later!
Matt:
*"New" car: We have put off having two cars as long as possible, but have finally caved. We realized it was the best way to actually get to see Matt with his 8am-10pm schedule. Now he can zip home for a little bit when a client cancels or his brain's going to explode from overload.
Matt has gone back to his true love, the Volvo. It's a great little car, especially considering it's 18 years old and has no A/C. The girls don't always like it (since 100 degree weather requires open windows), but for him it's a fun "project" car that reduces stress for him, and for both of us it brings back a lot of great dating memories.
*300+ hours: Because he has only one mode when it comes to his schedule (busy) and loves the challenges associated with seeing clients, Matt is now past 300 hours, and will likely have another 50 by the end of the summer. The best part: he will be done with his client hours well before graduation and feel really great about it. The worst part: he might end up with an ulcer or a breakdown before graduation, too!
*Teacher: As part of the MFT program, Matt will be teaching a class fall semester: Marriage Preparation. This will allow him to train for another aspect of becoming professor (maybe he'll even get a TA to take care of some of the work). It will be at 8am, so we hope the students will be awake and interactive, but I just told Matt to tell one of his classic stories, and he should be good! It will be excited to see what experiences he has with it.
Me:
To be honest, I don't really have much news to share but here's my attempt anyway:
*Couple Communication: Matt and I have finally completed the second half of our teaching to certify as instructors for a communication class/program. We will be official as soon as we take our instructor test! Matt's been using it in some of his therapy cases, so he's a bit more of a pro than me, but I enjoy the training and interacting with the couples we've taught.
*Relief Society 4th Sunday Teacher: I get to teach once a month in Relief Society now, and I don't know if I've ever been so completely excited for a calling (although I have enjoyed past callings). I have been able to study in-depth some of my very favorite talks, and I get to still be in Relief Society (when we're not sick, traveling or sub-ing that is). I am still learning what it takes to be a good teacher, but hopefully the women who are being "taught" are benefitting from it as much as I am!
Friday, June 27, 2008
Vanessa's threes
Since today is Vanessa's third birthday, I thought I'd share her top threes of her favorite things:
Shoes:
(The black ones are "ballet shoes")
Books:
(Princess Word Book),
, 
"Professions": Student (like Daddy), Princess (of course), Doctor (includes haircut and teeth checkup)
Indoor Activities:
, 
, 
Outdoor Activities:
, 
, 
Foods:
, 
, 
Shows:
, 
, 
Phrases: "I wanna go home, watch a movie, and drink chocolate maowk (milk)."
"I'm going to school (imitating Daddy). I'll see you later!"
"I love _____ (family member, friend, stranger she just said hi to). He/She is my best friend."
Movies:
, 
,
Animals:
, 
, 
Toys:
, 
,
Church: Nursery, Nursery, Nursery
Princesses:
, 
,
Songs: "I Am a Child of God," "Jesus song" (apparently any song about Jesus counts," and the Strawberry Shortcake theme song
HAPPY BIRTHDAY, PUNKIEDOODLE!
Shoes:
(The black ones are "ballet shoes")
Books:
(Princess Word Book),, 
"Professions": Student (like Daddy), Princess (of course), Doctor (includes haircut and teeth checkup)
Indoor Activities:
, 
, 
Outdoor Activities:
, 
, 
Foods:
, 
, 
Shows:
, 
, 
Phrases: "I wanna go home, watch a movie, and drink chocolate maowk (milk)."
"I'm going to school (imitating Daddy). I'll see you later!"
"I love _____ (family member, friend, stranger she just said hi to). He/She is my best friend."
Movies:
, 
,
Animals:
, 
, 
Toys:
, 
,
Church: Nursery, Nursery, Nursery
Princesses:
, 
,
Songs: "I Am a Child of God," "Jesus song" (apparently any song about Jesus counts," and the Strawberry Shortcake theme song
HAPPY BIRTHDAY, PUNKIEDOODLE!
WE LOVE YOU AND YOUR FUN-LOVIN' PERSONALITY!
Tuesday, June 17, 2008
On a walk with my girls...
I decided to dress the girls up one day before a walk and took my camera along for the fun of it. Here's what I got:
Sunday, June 08, 2008
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